Category: Life Issues

  • The Problem with Grief

    Sermon copyright (c) 2023 Dan Harper. Delivered to First Parish in Cohasset. The sermon text may contain typographical errors. The sermon as preached included a significant amount of improvisation.

    Readings

    The first reading is an excerpt from the poem “Two Dreams” by Margaret Atwood:

    Sitting at noon over the carrot salad
    my sister and I compare dreams.

    She says, Father was there
    in some kind of very strange nightgown
    covered with bristles, like a hair shirt.
    He was blind, he was stumbling around
    bumping into things, and I couldn’t stop crying.

    I say, Mine was close.
    He was still alive, and all of it
    was a mistake, but it was our fault..
    He couldn’t talk, but it was clear
    he wanted everything back, the shoes, the binoculars
    we’d given away or thrown out.
    He was wearing stripes, like a prisoner.
    We were trying to be cheerful,
    but I wasn’t happy to see him:
    now we would have to do the whole thing over again….

    The second reading is from a book by Elaine Pagels titled Why Religion?: A Personal Memoir. In this book, she tells about her son Mark’s death, followed by the death of her husband a year later, and how she made sense of their deaths.

    “Shaken by emotional storms, I realized that choosing to feel guilt, however painful, somehow seemed to offer reassurance that such events did not happen at random. During those dark, interminable days of Mark’s illness, I couldn’t help imagining that somehow I’d caused it If guilt is the price we pay for the illusion that we have some control over nature, many of us were willing to pay it. I was. To begin to release the weight of guilt, I had to let go of whatever illusion of control it pretended to offer, and acknowledge that pain and death are as natural as birth, woven inseparably into our human nature.”

    Sermon: “The Problem with Grief”

    The sermon this morning is titled “The Problem with Grief.” So there is no suspense, I’ll tell you right up front what the problem is with grief: Grief seems to be cumulative. That is, all the individual instances of grief we happen to experience in life seem to add up. And a lot of times the total sum of grief seems to add up to more than all the individual instances of grief. The memoir by Elaine Pagels, from which came the second reading this morning, is a perfect example of what I mean. In that memoir, Elaine Pagels tells about how her son died, and then a year later her husband died. As you read her memoir, it becomes clear that these two overwhelming experiences of grief, happening so close together, added up to something more than each experience of grief on its own. And this tallies with my own less intense experiences of grief: when I was grieving one thing, I seemed to be extra sensitive to other feeling of grief.

    So why is this a problem? Grieving has been a fact of life for human beings as long as there have been human beings. Surely we should be accustomed to it by now. Except that this has becomm a problem because there are at least two major sources of societal grief right now.

    First of all, there’s the grief that we’re all feeling as climate change and other environmental problems become more pronounced. Lack of ice in the Arctic, too much plastic in the oceans, diminishing natural habitats near us: there are so many environmental changes to grieve. A field biologist friend calls this “eco-grief,” the grief that comes from the knowledge of the looming ecological disaster.

    In addition to that, most of us are experiencing pandemic grief. This is the grief that most of society continues to experience every time people remember what we lost during the pandemic. Of course there are people for whom the pandemic went smoothly, and they don’t have any personal pandemic grief. But even if you’re not experiencing pandemic grief yourself, you’re surrounded by people who are. It is endemic in our society right now.

    Thus nearly all of us are experiencing the effects of both eco-grief and pandemic grief. These add up with whatever individual grief we happen to be experiencing. The sum total is a lot of grief.

    That’s it. Now you’ve heard the whole point of this sermon. Now there’s no more suspense, and you know the worst. If you want to check out now and stare out the window, I’ll try to talk softly.

    Now that you know the problem with grief, I’d like to devote the rest of the sermon to talking about how we can manage grief — how we can manage it both individually, and as a community. What can we do to make ourselves feel better?

    First of all, let’s talk about guilt. Grief and guilt often seem to come hand-in-hand. In the second reading, Elaine Pagels talks about the guilt she felt while she was grieving. She felt tremendous guilt after the death of her son. Surely she could have done more for him. Surely she could have fought more aggressively for treatment for him. Looking back, knowing his medical problems, she worried about what choices she made that might have made his situation worse. She felt guilty that she didn’t do more for him. She felt guilty that she didn’t advocate more aggressively for him. She felt guilty about choices she made that she thought might have made him worse. The guilt was dragging her down, and she had to find a way to deal with it.

    This mixture of grief and guilt happens to all of us. A friend dies, and we think: I should have reached out more, I should have been there for them. We think about the state of the environment, and we think: I should have gotten rid of that gas-guzzling car sooner. A parent or a spouse dies, and we think: I should have done more for them. I should have done this. I should not have done that. Those feelings of “should-have-done” are what lead us into guilt.

    But Elaine Pagels points out that when you’re feeling guilty, it is because you have convinced yourself that you have a great deal of control over your life, and that you have a great deal of control over the lives of those close to you. After my father went into his final illness, my sisters and I talked a lot about what we should have done differently:– we should have talked Dad out of thus-and-so, we should have told him to get a second opinion… there were many things we felt we should have done differently. But after his death, when we could think more calmly, it became clear to us that we had done the best we could with what we knew at the time. It’s easy to look back on the past and say, “I should have known.” But the fact of the matter is that we didn’t know, nor could we have known.

    This gets at a fundamental theological point. We human beings do not have a lot of control over our lives. We like to think we have a lot of control over our lives. We almost have to live our lives as though we have a lot of control. But in reality, we really don’t have as much control as we’d like to believe.

    This is one area where the conservative Christians maybe have an advantage over us. For them, God controls absolutely everything, and once they die they feel fairly secure that they’re going to go up to heaven and everything will be fine. We Unitarian Universalists live in a more complex reality. We acknowledge the possibility of random events; that is, God does not control absolutely everything. We acknowledge the possibility that well-intentioned actions can have unanticipated consequences; that is, even when we are doing out best to do what is right, things can go wrong. As for an afterlife, some of us believe a pleasant afterlife, and since we are Universalists we know we all get to go to heaven. Some of us, like Socrates, see death as the most perfect night of sleep you could ever have, untroubled by dreams or fitfulness. Some of us are quite content with oblivion. But nearly all of us tend to focus on this world, not the next world. We worry less about what happens after death, and more about what happens here in this life. We want to make this world better. We believe that we have the ability, and the free will, to make this life better. In short, we are perfect candidates for guilt.

    Back in the 1970s, the Unitarian Universalist theologian William R. Jones pointed out that within Unitarian Universalism, while the theists among us believe in God, and the humanists among us don’t believe in God, both parties believe in “radical [human] freedom and autonomy.” We are all existentialists. We have been thrown into an absurd world, and it is up to us to make meaning out of that world. The way we make meaning is through our actions. We cannot know all possible results of our actions, and fairly often our actions result in unforeseen consequences — because it is simply impossible for us to foresee every consequence of each action we take.

    If we can seriously acknowledge this, we have taken the first step towards releasing ourselves from some of the burden of guilt that we might carry around. We do the best we can, knowing that oftentimes things are not going to turn out as we had hoped. There will always be things we could not anticipate. Of course we’ll still feel guilty about decisions we made that didn’t turn out well. But once we can accept that we have less control than we’d like to think, guilt will have a lot less power over us.

    Once guilt has less power over us, then grief becomes a lot more manageable. If we’re not spending all our time thinking: “I should’ve done this,” or “I should’ve done that” — once we relieve ourselves of some of the burden of guilt, then we can actually do something with our grief.

    Which brings me to the next point. Grieving is usually a fairly lengthy process, and there’s no good way to speed it up. I’ve learned a lot about the grieving process from hospice workers. They typically tell us that after someone close to you dies, the most intense grieving will take about a year, often with a moment of intense grief on the first anniversary of that person’s death. Then, so they tell us, we can expect another year of somewhat less intense grief. After the second anniversary of that person’s death, the grief tapers off to a much more manageable level. Of course everyone is different, but the general experience of hospice nurses and hospice chaplains tells us that after someone close to us dies, most of us can expect about two years of grief.

    However, our society expects us to be done with grieving in a few weeks. As a minister, I’ve noticed this again and again. I’ll watch as someone loses a spouse, or a parent, and they get a lot of support from their workplace for about two weeks, and from their friends for about two months. Then they’re expected to be back to normal. Yet what I’ve seen again and again — and what I’ve experienced myself after the death of each of my parents — is that the worst of time grief seems to come about three months in, give or take a month. It’s at about three months in when the numbness wears off, and suddenly the feelings of grief become most acute. And three months is past the time when our society expects us to be done with grieving, when everyone expects us to be “back to normal.”

    But if you try to get “back to normal” too quickly, you can actually prolong your grief. During those two years of more intense grief, you have to take the time to allow yourself to grieve. If your life if filled with busy activity, allowing you no time to grieve, what seems to happen is that it takes longer than two years to get through the worst of grief. This, by the way, is one reason some people come here to attend Sunday services. Quite a few people start coming to Sunday services in the aftermath of the death of someone close to them. They come here to have some time for themselves, where they can grieve without being interrupted. Because you can sit here, going through the motions — pretending that you’re listening to the sermon, standing up and mouthing the words to the hymns — but what you’re really doing is dealing with grief. We need places like this, where we are allowed to sit and grieve if we need to.

    Our society doesn’t allow much space for grieving. Yes, we have developed grief support groups, and you can go see a therapist. You can install a grief app on your phone to help you grieve. Unfortunately, our society wants us to use grief groups and therapy and grief apps to hasten the grieving process, so that people can become more productive. That’s what our society wants us to do — be more productive. Whereas actually what we need is time to just be — we need to spend less time doing, less time doing therapy and doing grief group and doing our grief app — we need to spend more time just being human.

    Trying to hurry through grief doesn’t work. Of course you should use a grief app if that works for you. Of course you should see a therapist if you can afford it and if that will help you in your grieving. Of course you should participate in a grief support group if that’s going to help you. But don’t expect these things are going to make the grieving end more quickly. If you try to hurry through your grief, it will come back later to haunt you — just like a ghost in those old ghost stories. When we try to hurry through grief, what we are actually doing is ignoring our essential humanity. We are trying to pretend that we are machines that just need a little metaphorical oil to function more smoothly. We are trying to pretend that we are computers that happen to have a software bug called grief, and if we just get the right app, or if we just update our operating system, we can get rid of this bug. As a minister, I see this happening again and again. People try to hurry through grief, they try to hack their grief, they try to fix their grief as if grief is something that is broken — and it doesn’t work. You can’t hurry grief. You can’t hack grief. You can’t fix grief.

    Grief happens when someone we love, or something we love, is gone. If you want to get rid of grief, the only way to do that is by getting rid of love. If you don’t love anything, then you won’t grieve; you will be nothing more than a machine. Once you open your heart to love, you open yourself to the possibility of grief.

    This brings me to the final point I’d like to make about grief. Grief happens when something or someone you love is gone. From this, a logical consequence follows: When we are surrounded by love, then we will be supported in times of grief. Family, friends, and/or communities like First Parish can surround us with love. Love is what we need as we move through grief.

    Because of this, it makes sense to strengthen our ties with those groups where we can be surrounded by love. For many of us, our immediate families will be one of the most important groups to surround us with love. (However, I do want to acknowledge that not everyone’s immediate family has the possibility of being filled with love, and sometimes some of us have to get out of our immediate families.) But even those of us with immediate families that are filled with love need something beyond our immediate families. To that end, we might cultivate circles of friends and acquaintances. Even more important, in my opinion, are communities like First Parish, organized communities of friends and acquaintances where we share common values and where there are mechanisms in place the help us reach out to one another. We need communities like First Parish where people know what it is to grieve, and where people know what it is to love.

    All this takes time. Strengthening our families takes time. Building networks of friends and acquaintances takes time. Making caring communities like First Parish takes time. Yet we are pressured by society to spend less and less time on these things. We are pressured by society to spend more and more time being busy and productive.

    I’d like to suggest that this is where we want to be counter-cultural. Let’s resist that pressure to be busy and productive all the time. Let’s strengthen our families, nurture our friendships, be part of communities like First Parish. These are the things that allow us to be fully human.

    To grieve is to be human. To love is to be human. And maybe this is the real problem with grief these days, and the problem with love — our society does not value the time we need to spend in being human. But I would suggest to you that you will find it to be worth your while to become more human, even if that means you are less productive. Become more human. Fill your life with love. That is what we are meant to do.

  • Sleep

    Sermon copyright (c) 2023 Dan Harper. Delivered to First Parish in Cohasset. The sermon text may contain typographical errors. The sermon as preached included a significant amount of improvisation. The poems were read by Carol Martin, worship associate.

    There are those who find sleep to be a waste of time. Sometimes these are the same people who find night to be wasteful or fearful or something to be avoided. They may be the people who say that dreams are delusions and snares. The only good time, so they say, is the day time, the time of bright sunshine, and at night we turn on all the lights so that it looks like daytime. Day time is the good time, the pragmatic work time, the time for getting things done and working towards your goals.

    But where do your goals come from? The least of our goals come from the pragmatic work time. These are the incremental goals: we make a thousand dollars and next we want to make ten thousand dollars, then a hundred thousand dollars, then a million dollars. It all seems very grand, but what does it mean?

    In the time of the ancient Hebrew prophet named Joel, the nation of Israel had fallen on hard times, and they longed for a time when “the threshing floors shall be full of grain, the vats shall overflow with wine and oil” — the ancient equivalent of having a million dollars. But simply to have an abundance of physical pleasures was not enough, said Joel; beyond that, God would pour down God’s spirit upon all the people, and…

    “Your children will prophesy.
    Your elders will dream dreams,
    and your young people will see visions.”

    Dreams and visions…like the Langston Hughes poem “Dream Variations”…

    To fling my arms wide
    In some place of the sun,
    To whirl and to dance
    Till the white day is done.
    Then rest at cool evening
    Beneath a tall tree
    While night comes on gently,
    Dark like me—
    That is my dream!

    To fling my arms wide
    In the face of the sun,
    Dance! Whirl! Whirl!
    Till the quick day is done.
    Rest at pale evening . . .
    A tall, slim tree . . .
    Night coming tenderly
    Black like me.

    Langston Hughes praises rest and night and dreaming in his poem, and he adds something of vital interest to those of us in the United States: he connects these things to race and racism. Western culture has traditionally thought of darkness and night and sleep as being less than brightness and daylight and wakefulness. Beginning in the fifteenth century or so, Western culture went further and began equating skin color with things like daylight and darkness. Westerners started saying that people with darker skin colors were like darkness, night, and sleep. This meant (so they said) that darker skin colors were not as good as light skin colors, which were like daylight and wakefulness. Westerners started calling Africa the ”dark continent,” and this meant several things: that Africa was populated by people with black skin, that Africa was a dangerous “heart of darkness,” that Africa was not as enlightened as Europe, that Europe had the right to send its soldiers and warships to “enlighten” Africa.

    Langston Hughes turns this Western imagery upside down. Night is gentle and tender, he says, and then goes on to say that night is “black like me.” This one short poem challenges a metaphor that many in the West carry around inside ourselves: the metaphor that night and darkness and blackness are somehow bad, while day and light and whiteness are somehow good. Langston Hughes makes us ask ourselves: Why set up a hierarchy like that? Why not allow day and night to be equally good? And furthermore…why not allow White people and Black people (and all other skin colors) to be equal?

    Which brings us to a poem by Emily Dickinson…

    Sleep is supposed to be
    By souls of sanity
    The shutting of the eye.

    Sleep is the station grand
    Down which, on either hand
    The hosts of witness stand!

    Morn is supposed to be
    By people of degree
    The breaking of the Day.

    Morning has not occurred!
    That shall Aurora be —
    East of Eternity —

    One with the banner gay —
    One in the red array —
    That is the break of Day!

    Now the stereotype is that every time Emily Dickinson writes about “sleep,” she is actually writing about death. Therefore, many people will simply assum this is a poem about death, and leave it at that. But you can’t reduce Emily Dickinson’s poetry to a single simple logical explanation. There is more to this poem than meets the eye.

    Emily Dickinson tells us what “Sleep is supposed to be,” a mere mechanical “shutting of the eye.” But, she says, sleep is more than that: sleep is the “station grand / Where a host of witnesses stand.” Emily Dickinson knew the Hebrew Bible well, so it’s reasonable to hear echoes of the Bible in her poems. I think I hear echoes of the prophet Joel when he prophesied about how the elders will dreams dreams, and the children will prophesy, and the young people will have visions: a host of witnesses dreaming and making prophecies for the future. Sleep is more than the mechanics of shutting your eyes; day break is more than the sun rising. First come the dreams and visions. After that, we act on those dreams and visions. Day cannot exist without night. Night cannot exist without day.

    Emily Dickinson wrote this poem during the Civil War. With that in mind, we might say this is, in fact, a poem about death: the death of the many soldiers who died in that brutal war. But I also hear this as Emily Dickinson’s statement of hope for the future. When the Civil War ended in a victory for the North, when there was a victory over the forces wanting to maintain slavery, then would the dreams and visions for racial justice begin to be fulfilled. Well, here we are, a century and a half later, still trying to complete the work of the Civil War — still trying to bring complete equality and freedom to all people. Emily Dickinson’s poem is still topical.

    Perhaps we will always be striving for the perfect future that never quite arrives. Yet it is the dreams and visions that keep us moving towards that perfect future — it is sleep in the sense of the “station grand” surrounded by a host of witnesses that will bring us those dreams and visions of a perfect future.

    Which brings us to the third poem, by James Weldon Johnson, titled “Mother Night.” The range of his writing was unusually broad: he wrote lyrics of hit Broadway songs, and published a well-received novel, three books of poetry, a non-fiction book, political essays, and finally perhaps the best American autobiography of the twentieth century. At the end of his autobiography, he gives a summary of his religious outlook, which makes him sound very much like a Unitarian. With that in mind, here is his poem, “Mother Night”…

    Eternities before the first-born day,
    Or ere the first sun fledged his wings of flame,
    Calm Night, the everlasting and the same,
    A brooding mother over chaos lay.
    And whirling suns shall blaze and then decay,
    Shall run their fiery courses and then claim
    The haven of the darkness whence they came;
    Back to Nirvanic peace shall grope their way.

    So when my feeble sun of life burns out,
    And sounded is the hour for my long sleep,
    I shall, full weary of the feverish light,
    Welcome the darkness without fear or doubt,
    And heavy-lidded, I shall softly creep
    Into the quiet bosom of the Night.

    Now this is indeed a poem that equates sleep with death. But the poem says: death is not something fear; it’s something to be welcomed when the time is right. Now it was perhaps easier for him to say that when his time to die came along, he would, “full weary of the feverish light,” welcome the night of death. He wrote this poem when he was 51, by which age he had already lived a very full life: first African American to pass the Florida bar exam, hit songwriter on Broadway, successful poet and novelist, U.S. consul to Nicaragua during a revolution, and the first executive secretary of the National association for the Advancement of Colored People. If, like James Johnson, you’ve had a successful life full of major accomplishments, I think it’s easier to say that you might “welcome the darkness without fear or doubt.”

    Yet there’s more going on here than the poet saying, “Hey, I’ve had a good run, when it comes time to die, I’ll be ready.” He makes a theological point: out of the chaos of darkness came the universe. (Today we might talk about the Big Bang, but that’s a scientific theory that wasn’t developed until after James Weldon Johnson died.) From the primordial Night came blazing suns, and from blazing suns came planets and life and eventually human beings. And at the end of time, human beings, planets, stars, will all return to primordial Night. From stardust we have come, and to stardust we shall return. If this is what we really believe, we too will “welcome the darkness without fear or doubt.” James Weldon Johnson is telling us that each human life is of utmost significance precisely because it participates in the great drama of the universe, from the Big Bang to the ultimate end of everything when entropy finally takes over. You may or may not agree with him, but you can see how such an attitude might reconcile him to death: like Socrates, he is a poetic rationalist who understands death as a long night of perfect sleep; not something to be feared, but something to be desired, when the time comes.

    Each of these three poems tells us different things about sleep. Langston Hughes upends the old Western notions that nighttime and sleep are bad, that blackness is bad and whiteness is good, that dreams should be ignored: instead, he says that night and darkness and blackness and dreaming and sleep are things we should value. Emily Dickinson tells us that sleep need not be the mere shutting of the eye, for when we are guided by a host of witnesses it can guide us to a hopeful future. And finally, by placing our brief human lives in the context of the lifespan of the universe, James Weldon Johnson tells us that sleep is not something we need to fear.

    On this day when we lose an hour of sleep, I hope I’ve convinced you that sleep is good. Sleep is more than merely good, it is cosmically good, it connects us with human striving for justice and with the life of stars and the universe. With that in mind, I think I’ll take a nap this afternoon to make up for the hour of sleep I lost last night.

  • The Disabled God for Unitarian Universalists

    Sermon copyright (c) 2022 Dan Harper. Delivered to First Parish in Cohasset. The sermon text may contain typographical errors. The sermon as preached included a significant amount of improvisation.

    Readings

    The first reading is from The Disabled God: Toward a Liberatory Theology of Disability by Nancy Eiseland.

    “For me, epiphanies come too infrequently to be shrugged off as unbelievable. … I had waited for a mighty revelation of God. But my epiphany bore little resemblance to the God I was expecting, or the God of my dreams. I saw God in a sip-puff wheelchair — that is, the chair used mostly by quadriplegics enabling them to maneuver by blowing and sucking on a straw-like device. Not an omnipotent, self-sufficient God, but neither a pitiable, suffering servant. In this moment, I beheld God as a survivor, unpitying and forthright. I recognized [God] in the image of those judged ‘not feasible,’ ‘unemployable,’ with ‘questionable quality of life.’ Here was God for me.”

    The second reading is from the 2022 book The Future Is Disabled by Leah Lakshmi Piepzna-Samarasinha.

    “It’s radical to imagine that the future is disabled. Not just tentatively allowed to exist, not just: ‘OK, I guess there’s one white guy with a wheelchair, cool — diversity.’ But a deeply disabled future, a future where disabled, Deaf, Mad, neurodivergent bodyminds are both accepted without question as part of the vast spectrum of human … ways of existing, [and] where our cultures, knowledge, and communities shape the world….

    “Some people have scoffed at me when I broached the idea of a majority disabled future — surely I don’t mean this literally? But I kind of do….

    “We are in the third year of a global mass disabling event — the COVID-19 pandemic — where, as I and many other disabled activists and people have noticed and stated, the world has been [disabled]. The entire world has been immersed in a disabled reality for the past two years. Masking, hand-washing, long-term isolation, awareness of viruses and immune vulnerability, the need for disabled skills of care … are just a few of the disabled ways of being that everyone, disabled and not, have been forced to reckon with.

    “The COVID-19 virus and the failure to create a just global public health and economic response to support people undergoing it is also creating a disabled world in that mass numbers of people are becoming newly or differently disabled because of getting COVID, long COVID, and/or long-term complex post-traumatic stress disorder and other mental disabilities from the grief, loss, and stress of the pandemic….”

    Sermon — The Disabled God for Unitarian Universalists

    Let’s start with some statistics. The statistics around disability in the United States are attention-grabbing numbers, and help us understand why disability is so important for us to talk about.

    The Center for Disease Control issued a report in August, 2018, with the imposing title, “Prevalence of Disabilities and Health Care Access by Disability Status and Type Among Adults — United States, 2016” [Catherine A. Okoro et al.]. Using data from 2016, the authors of the study determined that one in four adults in the United States, or an estimated 61.4 million adults, reported a disability.

    The study covered six categories of disability. Most prevalent was mobility problems, that is, serious difficulty walking or climbing stairs, with 13.7% of adults reporting this as a disability. Cognition disability, or serious difficulty concentrating, remembering, or making decisions, was reported by 10.8% of adults. Disability affecting independent living, that is, difficulty doing errands alone, was reported by 6.8% of adults. Serious difficulty hearing was reported by 5.9% of adults. Serious difficulty seeing was reported by 4.6% of adults. And finally, disability affecting self-care, that is, difficulty dressing or bathing, was reported by 3.7% of adults.

    Those figures are based on data gathered in 2016, data from before the pandemic. I would expect that the numbers of adults reporting cognitive disabilities would be somewhat higher today. We’re seeing an epidemic of mental illness that appears to be a direct result of the pandemic, including anxiety disorder, depression, and other ailments; this would tend to increase the numbers of adults reporting a cognitive disability. Then there’s long COVID, which can affect both cognition and independent living. As a result, I wouldn’t be surprised to learn that in today’s post-pandemic world, something more than one in four U.S. adults with some form of disability.

    When you listen to these statistics, you come to an obvious conclusion: disability is a normal part of life. Disability is normal, yet our society tends to think of disability as somehow abnormal. I remember hearing a disability rights activist say that those of us who consider themselves to be able-bodied should really be thinking of ourselves as temporarily able-bodied. Most of us will be disabled at some point in our lives. If we’re not disabled ourselves, someone close to us will be disabled and there’s a good chance we’ll wind up helping care for for that person. Disability is a normal part of life.

    Somehow we have to get ourselves to remember that disability is normal. Religion is a powerful tool for telling ourselves stories to make sense of life. So what stories might we, as a religious people, tell ourselves to remind ourselves that disability is normal?

    First of all, we have to let go of the old religious stories that say disability is always something to be cured, something to be gotten rid of. This is, unfortunately, a regular part of Western folk religion. While it is true that sometimes disability is something that can be cured, more often disability is simply a part of who we are. We are a certain gender, we are a certain race or ethnicity, we are a certain biological sex, we have a sexual orientation — these are all aspects of who we are.

    This is why what Nancy Eiesland says in the first reading is so profound. Eiesland asks: What if God is a quadriplegic? What if God is disabled? What if God is disabled in any one of the many ways human beings are disabled? A central part of the teachings of Western religion is that human beings are made in the image of God. The clearest statement of this comes in the Torah, the Hebrew Bible, in the book of Genesis, chapter 1 verse 27: “So God created humankind in his image, in the image of God he created them; male and female he created them.” Later on in Genesis, there’s another story of how God created male human beings first, then created female human beings from ribs of the male human beings. But this later passage gives us a story that is, not to put too fine a point on it, a little weird; I prefer the story in Genesis 1:27. In that first story, God creates humankind in God’s image, both male and female human beings, God creates in God’s image. (As an aside, this implies that God is actually, to use current jargon, non-binary gender; but that’s a sermon for another day.) So if all human beings are created in the image of God, then logically disabled human beings are also created in the image of God. This is Nancy Eiesland’s profound insight.

    Eiesland’s insight is extremely important to Western cultures, like our culture here in the United States. Even though not everyone here in the United States is Christian or Jewish, our Western culture contains has an unexamined assumption that this story of the creation of human beings is somehow true. The Declaration of Independence of the United States claims that all men (to use the gender-specific language of the late eighteenth century) are created equal, and endowed by their Creator with certain inalienable rights. We human beings are created equal by God. We human beings have human rights. And the justification for human rights in the West derives in large part from the Torah, from the book of Genesis, from this story that God created all human beings in God’s image. To be able to have human rights — this is a great gift we have received from the Bible, and it’s one of the reasons we religious liberals need to reclaim the Bible as our own.

    (Now at this point, those of you who are atheists, or heretics, or Buddhists, or nothing-in-particularists are saying to yourselves: This is all very fine and good, but I don’t believe in that old story. The God of the Israelites, the God of the Jews, the God of the Christians — that is not my god. But please remember we’re not talking about personal, individual beliefs here. We’re talking about the big widespread myths that underlie a shared Western culture in which we all participate, like it or not. So even if you don’t believe in this myth personally, this is a myth we want to claim for ourselves. This is one of the myths that gives us human rights in the West — surely, we can work with this, even if we personally don’t believe in it. So even for those of you for whom the Bible is not your bag, there are solid pragmatic reasons why we religious liberals want to retell this story as the shared inheritance of anyone living in our Western culture.)

    To return to Nancy Eiesland: If God created all human beings in God’s image, then clearly God also created disabled people in God’s image. In other words, God is disabled. In other words, disabled persons have human rights just as able-bodied people have human rights. We all have human rights.

    This is a surprisingly important conclusion. The Center for Disease Control tells us that one in four adults in the United States is disabled. If disabled people did not have full human rights — if, according to one of the founding myths of our Western culture, God did not create disabled people in God’s image — then one in four adults would not have full human rights. Clearly, we could not tolerate such a situation. Instead, we say: all people have human rights, regardless of ability.

    This conclusion is surprisingly well aligned with the Universalist tradition of which we are the inheritors. The old Universalists pointed out that if God is actually as good as everyone says, God is not going to condemn anyone to an eternity of damnation in hell. Instead, the old Universalists said that all human beings are equally worthy of God’s love. Now apply this old doctrine of universal salvation to people with disabilities: all persons are equally worthy of God’s love. This is an important corrective to an unfortunate strain of the Western Christian tradition that said people with mental illness were demon-possessed, or that people with physical disabilities were either sinners or somehow cursed by God. Nonsense, we Universalists would reply. That is ridiculous. All persons are worthy of God’s love. No demons are involved, no sin is involved, and no cursing is involved. If you believe that kind of stuff and nonsense, you’re the one who is sinning. Disabilities are not marks of disfavor from God, since everyone is loved equally by God. A disability is simply that: a disability. (This notion of universal love, by the way, is one of the chief reasons I’m proud to say I’m a Universalist, even if I don’t have quite the same conception of God as the old-time Universalists had.)

    All this might tend to have personal importance for the one in four among us today who happen to be disabled. But it’s also likely to be of personal importance to all of us at some point in our lives. Remember, there’s a very good chance that most of us, probably all of us, are going to be temporarily or permanently disabled at some point in our lives. I know people who have contracted long COVID, and who haven’t been able to work or to function normally for months; that would be considered a temporary disability. The pandemic has apparently caused an epidemic of mental illnesses, and some of these mental illnesses are serious enough to be considered disabilities. As I noted earlier, it seems likely that if the CDC researched the rate of disability in the United States today, more than one in four United States adults would report themselves as being disabled. This is what Leah Lakshmi Piepzna-Samarasinha means when they suggest that we might be headed towards a majority-disabled future.

    When I think about a majority-disabled future — or even a future where one in three adults in the United States are disabled — my big concern is how we’re going to care for one another. As a whole, our society provides inadequate support for persons with disabilities. Anyone among us who are caring for an aging partner, or an aging parent, has direct experience of this. Anyone among us who has had to fight for accommodations for a child with disabilities has had direct experience of this. Anyone among us who has had to explain to an employer why we are not able to work as much as usual because of long COVID or Lyme disease has had direct experience of this — actually, while I was recovering from a pulmonary embolism a few years ago, I had to explain to the congregation I was then serving why I could no longer work fifty hours a week, but had to drop back to working just forty hours a week.

    Since our society provides little support to persons with disabilities, we’re going to have to figure out how to care for one another. This is part of what Leah Piepzna-Samarasinha means when they say that disabled people’s “cultures, knowledge, and communities [can] shape the world.” People with disabilities have had to learn how to care for one another; they have had to learn skills of interdependence. We can learn skills of interdependence from the disabled community.

    Actually, here at First Parish we already work on our interdependence skills. We have the Caring Circle, where we help each other out when someone is ill or needs meals or other help. And we provide to each other not just physical care, we also give each other spiritual care. We talk to each other about our health problems or disabilities, we listen to one another, perhaps most importantly we are simply there for one another. We do that spiritual care for one another when we go to social hour after the service and talk with one another; or when we pick up the phone and call someone who can’t make it here on Sunday mornings; or when we send cards or texts or set up a videoconference call with someone who is stuck at home.

    Here at First Parish, we’ve already started caring for one another. Yet we can learn more about caring for one another from the disabled community. I’ll give you one example of how we can learn from the disabled community — and I almost hesitate to say this, because I know what a hot-button issue this is — but each of us might consider wearing masks more often. I know how annoying it is to wear a mask, but wearing a mask can serve as a form of mutual aid and caring that supports the health of other people, particularly people who are immune-compromised. This is one way we can support interdependence.

    And as a liberal religious people, there is another small task we can take on. We can reclaim that old story in Genesis where God creates all persons in God’s image. (Remember that this is a central myth in our Western culture; you may not believe in God yourself, but the majority of people in our society do.) If we happen to hear anything that sounds like someone is casting disabled people as less than human, we might gently challenge them. In the words of the Torah, “God created humankind in God’s image, in the image of God, God created them.” However you conceive of God — as a myth or metaphor, as a cultural inheritance, as a living presence in your life, as something else altogether — whatever your conception of God, we can think of God as disabled because God created all humankind in God’s image. Or to put it in more familiar language, we are all endowed with certain inalienable rights.